Path: ...!weretis.net!feeder9.news.weretis.net!panix!.POSTED.panix3.panix.com!dannyb
From: danny burstein <dannyb@panix.com>
Newsgroups: rec.arts.tv
Subject: Sickle Cell, was: Watson "The Man With the Glowing Chest" 3/9/2025 (spoilers)
Date: Mon, 17 Mar 2025 22:39:35 -0000 (UTC)
Organization: PANIX Public Access Internet and UNIX, NYC
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[sull fnip]

The very real treatment, which Sixty Minutes puff pieced
on five years ago, just had another Big Success:

https://www.cbsnews.com/newyork/news/sickle-cell-anemia-cure-new-york/

Note it's still _extrememly expensive_ (although the only people,
at least publicly, who've gotten it haven't paid directly [a]) 
and the numbers who've been treated (again, at least publicly)
barely crack the double digits.

As I mentioned in an earlier post, there was a strong movement
to get this the same Medicare "Special Casing" that End Stage
Renal Disease ("ESRD", kidney dialysis/transplant) gets (that
is, full coverage [b]) prior to last year's election, but then,
well, the election.

[a] I've seen rumoured reporting of people who have, indeed,
paid out the millions of dollars, but no details.  I wouldn't
be surprised if this is happening.

[b] to be clear, this still leaves lots of expenses and
a miserable life, but it's a Big Step for these folk.




-- 
_____________________________________________________
Knowledge may be power, but communications is the key
		     dannyb@panix.com 
[to foil spammers, my address has been double rot-13 encoded]